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2003 Annual Report

(April 2003–March 2004)

 

Japan Spinal Cord Foundation (JSCF)

[Main Activities]

Activities to Promote Studies on Nerve Regeneration

• May 2003: Sponsored 3rd Spinal Cord Regeneration Study Promotion Seminar. (Lecturer: Prof. Hideyuki Okano (Keio University, Japan))

• July 2003: Encouraged Japanese Minister of Health, Labor and Welfare personally to promote regeneration medicine.

• Dec. 2003: Requested Japanese government乫s experts committee to lift ban on studies on human neural stem cells at hearing on 乬Guideline for Clinical Studies Using Human Stem Cells乭 (expected to be approved in 2004).

• Jan. 2004: Discussed issues of scientific evidence and human subject protection regarding clinical study approved by Institutional Review Board (IRB) at Kansai Medical University (Japan), in which bone marrow stromal cells are transplanted into cerebrospinal fluid of subjects in the acute stage of spinal cord injury, with co-researchers Prof. Chizuka Ide and Assistant Prof. Yoshihisa Suzuki (both of Kyoto University, Japan). (Study will be conducted following resubmission of application to IRB after Sept. 2004.)

• Feb. 2004: At a symposium, requested bioethics experts committee of Council for Science and Technology Policy in Japanese Cabinet Office to permit use, for therapeutic purposes, of human embryos in research. (Again requested committee to lift ban at hearing held in April 2004; finally approved through a vote at committee meeting held in June.)

Activities to Improve Quality of Life (QOL) of People with Spinal Cord Injury

• Nov. 2003: Sponsored lecture in Tokyo by Dr. John R. Bach (University of Medicine and Dentistry of New Jersey, U.S.A.) on 乬Noninvasive Mechanical Ventilation乭.

• Feb. 2004: Conducted statistical survey of 6000 people on abnormal pain after spinal cord injury (1650 replies collected; results to be released in Aug. 2004.)

Regular Activities

• Publication of quarterly JSCF Newsletter (13,000 free copies distributed).

• Telephone/e-mail counseling, publication of medical literature, video rental service, etc.


2003 Financial Accounting

(April 2003–March 2004)

 

Japan Spinal Cord Foundation (JSCF)

 

 

[Income]                                                      (Description)

 

Yen

 

Grant money

2,560,000

 

Donations

10,040,000

 

Subtotal:

12,600,000

(Approx. US$116,000*)

Amount brought forward

6,660,000

 

Grand total:

19,260,000

(Approx. US$178,000*)

 

[Expenditures]

Projects

3,370,000

Regeneration campaign, lecture meeting on respiration, statistical survey on pain after SCI, and rehabilitation equipment

Printing and binding

1,720,000

JSCF News; JSCF reports

Personnel

2,370,000

Staff salaries

Rent

1,920,000

Headquarters

Other administrative

2,460,000     

 

Subtotal:

11,840,000     

(Approx. US$109,600*)

Amount carried forward

7,420,000丂丂丂

(Approx. US$68,700*)

 

 

 

 

 

仏侾US亹亖108.00 Yen


2004 Board Members

(April 2004–March 2005)

 

Japan Spinal Cord Foundation (JSCF)

 

Title

Name (male/female)

Description 

President

Makoto Ohohama (m)

Injured in 1974 (C4, 5 Quad)

Concurrently serving as Director of Secretariat

Vice president

Tuguo Ohokubo (m)

Injured in 1985 (L2 Para)

In charge of lobbying activities

Vice president

Tamio Hirose (m)

Injured in 丂丂(C5 Para)

Coordinator for Int. Relations (CIR)

Vice president       

Norio Fujiki (m)   

Injured in 1982 (C4, 5 Quad)

Executive director丂丂

Nagaoki Shirai (m)

Injured in 1994 (C6 Para)

Vice-Secretary General

Executive director   

Tooru Aizawa (m)

Injured in 2001 (C5, 6 Para)

Graduate fellow of law school

Executive director   

Takiko Wakabayashi (f)

Non-disabled (office worker)

Executive director   

Michiko Sasa (f)

Non-disabled (care coordinator)

Executive director   

Motoyuki Watanabe (m)

Non-disabled

Full-time secretarial staff

Certified social welfare counselor

Auditor

Naonori Kawanabe (m)

Non-disabled

Certified Public Accountant

Auditor

Akira Tsumaya (m)

President of Spinal Injuries Japan

 

translated by Yuzuru Kamezawa丂丟

The Japanese Red Cross Language Service Volunteers