PUBLICATION BY JSCF

All titles are in Japanese and are available for distribution free of charge.

 

Japan Spinal Cord Foundation News
　　quarterly bulletin, circulation 12,000

 

Liberation from Wheelchairs – Stand Up 21 Reports
　　Collection of reports from the inaugural lecture meeting of the JSCF.  　

　Contains “Nerve Restoration of Damaged Spinal Cords” (by Professor Sa

　buro Kawaguchi, Kyoto University) and Talk Session “Medical Service and

　Welfare Expected in the 21^st Century - Reports from Breathing Machine

　Users and Severely Handicapped People”

 

A Collection of Research on Spinal Cord Injury in the USA　 (Out of stock)　
　　Japanese version of the research papers on spinal cord regeneration,

　such as the Miami Project

 

Sexuality of Spinal Cord Injured Persons
　　Contains “Sexual Function of Spinal Cord Injured Persons” and 　

　“Treatment of erectile disorder (ED)”

 

Survival Mail of a Breathing Machine User

　　An email communication log of a home-based breathing machine user,

　on topics such as the know-how of using breathing machines and QOL.

 

Research Report on the Care Situation for the Persons with High-cervical

Injuries at Home
　　For the persons with high-cervical injuries in Japan, there are few options

　available other than life-long institutionalisation or home-based care by

　their families. However, yet the administration has no grasp of the reality of

　home-based care.  Also, there are no official statistics regarding spinal cord

　injury.

　　To address this situation, patients and their attendants visited 50 homes

　from Hokkaido to Kyushu in pairs for a fact-finding research project. 
　　This detailed study on nursing care revealed the time required for home

　care per day; 27 hours (which means at least three attendants needed) for

　a breathing machine user, 24 hours for injuries of C4 and above, and 14

hours for injuries classified as C5 and below.

 

Research Report on the Admission Status of Spinal Cord Injured Persons at Hospitals Across Japan
　　Medical centers for spinal cord injury are a norm in Europe and America,

　yet only one such facility is found in Japan.  Therefore, it is a reality that

　injured people are urged to leave hospitals in the acute stage, without re-

　ceiving appropriate medical care and rehabilitation. 

　　In order to shed a light on this medical situation, questionnaires were sent

　to 250 medical institutions across Japan by post.  Based on the responses

　from 106 institutions, problems concerning the medical care of spinal cord

　injury were brought to light.

　　In short,  there was an extreme imbalance among the therapy institutions,

　where two thirds of all patients had been admitted to only 11 institutions

　across the country at the time of the research.  All the other institutions were

　“not accepting such patients” or “responding to patients at the acute stage

　only”.  The same problem was seen at rehabilitation facilities.
　　To resolve this situation, it was pointed out that the medical insurance

　system should be stepped up to cover treatment of spinal cord injuries, and

　that it was necessary to establish “Spinal Cord Injury Centers” all over the

　country to provide medical care from treatment to rehabilitation.