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PUBLICATION BY JSCF

All titles are in Japanese and are available for distribution free of charge.

 

Japan Spinal Cord Foundation News
@@quarterly bulletin, circulation 12,000

 

Liberation from Wheelchairs – Stand Up 21 Reports
@@Collection of reports from the inaugural lecture meeting of the JSCF.  @

@Contains gNerve Restoration of Damaged Spinal Cordsh (by Professor Sa

@buro Kawaguchi, Kyoto University) and Talk Session gMedical Service and

@Welfare Expected in the 21st Century - Reports from Breathing Machine

@Users and Severely Handicapped Peopleh

 

A Collection of Research on Spinal Cord Injury in the USA@ (Out of stock)@
@@Japanese version of the research papers on spinal cord regeneration,

@such as the Miami Project

 

Sexuality of Spinal Cord Injured Persons
@@Contains gSexual Function of Spinal Cord Injured Personsh and @

@gTreatment of erectile disorder (ED)h

 

Survival Mail of a Breathing Machine User

@@An email communication log of a home-based breathing machine user,

@on topics such as the know-how of using breathing machines and QOL.

 

Research Report on the Care Situation for the Persons with High-cervical

Injuries at Home
@@For the persons with high-cervical injuries in Japan, there are few options

@available other than life-long institutionalisation or home-based care by

@their families. However, yet the administration has no grasp of the reality of

@home-based care.  Also, there are no official statistics regarding spinal cord

@injury.

@@To address this situation, patients and their attendants visited 50 homes

@from Hokkaido to Kyushu in pairs for a fact-finding research project. 
@@This detailed study on nursing care revealed the time required for home

@care per day; 27 hours (which means at least three attendants needed) for

@a breathing machine user, 24 hours for injuries of C4 and above, and 14

hours for injuries classified as C5 and below.

 

Research Report on the Admission Status of Spinal Cord Injured Persons at Hospitals Across Japan
@@Medical centers for spinal cord injury are a norm in Europe and America,

@yet only one such facility is found in Japan.  Therefore, it is a reality that

@injured people are urged to leave hospitals in the acute stage, without re-

@ceiving appropriate medical care and rehabilitation. 

@@In order to shed a light on this medical situation, questionnaires were sent

@to 250 medical institutions across Japan by post.  Based on the responses

@from 106 institutions, problems concerning the medical care of spinal cord

@injury were brought to light.

@@In short,  there was an extreme imbalance among the therapy institutions,

@where two thirds of all patients had been admitted to only 11 institutions

@across the country at the time of the research.  All the other institutions were

@gnot accepting such patientsh or gresponding to patients at the acute stage

@onlyh.  The same problem was seen at rehabilitation facilities.
@@To resolve this situation, it was pointed out that the medical insurance

@system should be stepped up to cover treatment of spinal cord injuries, and

@that it was necessary to establish gSpinal Cord Injury Centersh all over the

@country to provide medical care from treatment to rehabilitation.